Despite ALS, there are some things that we can keep doing and celebrating together. I used to cry every year when setting up Christmas decorations, thinking it was going to be my husband's last one. He continues to celebrate Christmas with us.
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As a teenager-to-twenty something with familial support, a "nest egg" isn't as important as transportation.
We were both crying in the priest's office. Father said, "It doesn't have to be this way". I totally didn't get it at the time.
Our middle daughter was getting married in a few months, and he was going to "walk" her down the isle. He chose life.
My husband was almost 49 years old when he received the diagnosis of ALS 15 years ago.
Once a week my husband and I go out without the kids to enjoy each other's company, de-stress from the week, and prepare for the upcoming week.
...actually, problem of the past half decade...
If you can't open it, you can't eat it... and other rules.
The hardest thing is getting started. The first thing I force myself to do is to get fully dressed.