My husband wanted to make us look like Buddhist Monks, but we had Christmas family photos that night. As a compromise, we shaved the boys' heads, and kept the girls' hair longer.
Go to the bathroom, yes. Play in the bathroom, yes. Report to his teacher that he went potty, yes. ACTUALLY pee-pee in the potty? Nope.
My mom lifted the 2 month old up so that he was in my dad's direct line of vision. She said, "Would you be working right now if you didn't have ALS?" My dad blinked, to indicate Yes. She continued, "I would be working too. Then we both would have missed out on all this."
Identify Your New Year's Resolutions (a.k.a. Goals) What would you like to make a top priority in your life? What has stopped you from achieving this goal in the past? What steps can you make to set yourself up for success? It's not too late to make a plan!
Despite ALS, there are some things that we can keep doing and celebrating together. I used to cry every year when setting up Christmas decorations, thinking it was going to be my husband's last one. He continues to celebrate Christmas with us.
We were both crying in the priest's office. Father said, "It doesn't have to be this way". I totally didn't get it at the time.
Our middle daughter was getting married in a few months, and he was going to "walk" her down the isle. He chose life.
My husband was almost 49 years old when he received the diagnosis of ALS 15 years ago.
The key to staying in "good shape" is fitting healthy habits into your lifestyle. The trouble is, my "lifestyle" is in the habit of murdering my healthy habits.
I would love to watch my boys play in high school games someday... but for now, unorganized sports is as good as it gets.