My mom lifted the 2 month old up so that he was in my dad's direct line of vision. She said, "Would you be working right now if you didn't have ALS?" My dad blinked, to indicate Yes. She continued, "I would be working too. Then we both would have missed out on all this."
Despite ALS, there are some things that we can keep doing and celebrating together. I used to cry every year when setting up Christmas decorations, thinking it was going to be my husband's last one. He continues to celebrate Christmas with us.
We were both crying in the priest's office. Father said, "It doesn't have to be this way". I totally didn't get it at the time.
Our middle daughter was getting married in a few months, and he was going to "walk" her down the isle. He chose life.
My husband was almost 49 years old when he received the diagnosis of ALS 15 years ago.