Despite ALS, there are some things that we can keep doing and celebrating together. I used to cry every year when setting up Christmas decorations, thinking it was going to be my husband's last one. He continues to celebrate Christmas with us.
We were both crying in the priest's office. Father said, "It doesn't have to be this way". I totally didn't get it at the time.
My husband was almost 49 years old when he received the diagnosis of ALS 15 years ago.